Long COVID and Driving

This week’s blog is written by Ellen Chisman, Occupational Therapist, Leeds Long COVID Rehabilitation Service.

For some, being a driver is a key part of operating and managing daily life.

The prospect of not being able to drive can be difficult, even something we may avoid addressing.

But there are responsibilities drivers have around their abilities and safety to drive. Long COVID has multiple symptoms and factors which means there can be implications around driving. This is something we recognised we needed to explore further in the Leeds Long COVID Rehabilitation Service.

A couple of colleagues and I spent some time increasing our own knowledge and understanding around driving guidelines, and also our responsibilities as healthcare professionals. We discussed Long COVID and how ability and safety to drive may be impacted. Key information for staff was cascaded, and the information sheet developed for service users shared. Our holistic assessments explore whether someone is a driver, but a discussion about driving may also be prompted e.g. from someone’s descriptions of their symptoms or related issues like sleep. I’ve shared the process we went through to highlight some of the considerations for those reading who may be drivers with Long COVID and/or people working with those with Long COVID.

Some symptoms of Long COVID could impact someone’s ability and safety to drive. This relates to both safety to themselves, and to others. Symptoms such as fatigue or “brain fog” can cause difficulty with alertness, processing information, decision-making and reaction times. It could also be issues that cause distractions, e.g., pain, breathlessness, or palpitations, depending on severity.

It’s also important to consider related factors, such as disturbed sleep as mentioned previously. Someone’s mental health could impact ability and safety to drive depending on the nature of the issues and severity. Both low mood and anxiety can cause deficits in executive functions (memory, planning, sequencing, logical thinking, adaptable thinking, decision-making, self-control). Feeling agitated or irritable is also something to consider, and some people we see report changes to their emotional regulation such as having less patience.

Medications taken to help symptoms could cause side-effects, impacting driving safety. Pain killers, for example, can have a sedating effect.

Key things to note regarding driver responsibilities are outlined in the box below below:

It is your responsibility to ensure that you are safe to drive, and that you do not drive if you do not feel safe to do so.
You can be fined up to £1,000 if you do not tell the DVLA about a medical condition that affects your driving, and your insurance will be invalid. You may be prosecuted in you’re involved in an accident as a result.
There are some health conditions that need to be reported to the DVLA, and others that only need reporting if the condition or treatment affects your ability to drive.
We strongly recommend people use the updated DVLA guidance about specific conditions online Check if a health condition affects your driving: Find your condition on the A to Z list – GOV.UK (www.gov.uk) or calling DVLA Medical Enquiries 0300 790 6806.
Informing the DVLA does not necessarily mean you will lose your license. They will collect the information they need to make a decision, and their website has guidance under what conditions you can keep driving whilst the decision is being processed.

You can have an assessment on your safety to drive with your GP, and there are also places you can be referred to for a practical assessment.

If you are advised not to drive by a healthcare professional, or told you need to inform the DVLA of conditions but do not follow this advice, the professional can inform the DVLA if they are concerned

It’s worth mentioning driving in relation to the 3Ps of fatigue management; Pacing, Planning, and Prioritising, which can be helpful for managing other symptoms too. Variability in symptoms with Long COVID is common, with some days better than others. It can be a good idea to have a “plan B” for travel if you are not up to driving. Travel can itself be fatiguing and cause an increase in symptoms. You might want to consider which trips you need to do on difficult days, but also whether an alternative could be considered e.g., if a lift is available or funding a taxi is an option. Unfamiliar and busy routes or worries about getting parked can cause additional strain. However, driving can be very advantageous, and alternatives may be difficult to arrange. It may be helpful to do some planning around your journey- what time of day you go, what route, where else can you park, where you can take breaks. Where possible, avoiding situations where you are relied upon to drive someone else, or there is a plan B in place if needed. For journey needs related to work, people can self-refer to Access to Work for an assessment and possible grant for things like taxis.

Driving can be a sensitive subject to discuss. It can be seen as someone’s independence or “lifeline” to accessing things out of the home. However, drivers needs to take responsibility for ensuring they are safe to drive, and this is in relation to any condition not just Long COVID. Healthcare professionals also play a part in asking questions, sharing information, and acting on concerns.

Sources: DVLA website and General Medical Council website accessed March 2023

Piloting a new pathway to support people living with Long Covid

This week’s blog is written by @StrongZoestrong and colleagues from @pogo_health. Their website can be accessed by clicking here.

“I got great help, especially learning the breathing exercises and how to use my lungs properly. I’d recommend the service to anyone. In fact, my neighbour had COVID, and I told her all about it, about the breathing and how to plan your day”. – Catherine, 67

You only have to watch the recent BBC Panorama Forgotten heroes of the covid front line to discover that Long Covid hasn’t just gone away. It is in fact very much still present in our communities and even more so if, like us, you work in the health or social care sectors.

In Scotland in 2022, our GPs were struggling with ideas on how to better support Long Covid patients and were overwhelmed with appointments. The only referrals that they could make involved significant waiting times. At the same time, charities such as Chest Heart & Stroke Scotland (CHSS), who had the resource and skills to help were not getting referrals through from primary care.

Pogo Digital Healthcare, NHS Lothian and Chest Heart & Stroke Scotland in partnership, created an integrated digital care pathway, enabling patients to receive tailored support straight away, using a mobile application MyTailoredTalks to connect services across sectors.

MyTailoredTalks features a self-assessment questionnaire, which upon completion generates tailored information to support each individual patient. The content may include information about common symptoms including fatigue, breathlessness, and difficulty concentrating, as well as advice catering to issues such as getting back to work and coping financially.

The platform also offers a symptom tracker and includes an area where patients can request a call-back from the Long Covid Advice Line provided by Chest Heart & Stroke specialist nurses.

This short film explains how the pathway works MyTailoredTalks for Long Covid

Over 26 GP practices and 200 patients have now used the pathway, and feedback so far has been positive. Whilst this pathway has not been designed to tackle complex cases of Long Covid, it has been shown to support people struggling with some of the most common symptoms. The hope is that over time, pathways such as ours will provide enough support to less complex cases, freeing up capacity in the system to better support those requiring more specialist interventions.

To find out more about our pilot please read our recently published White Paper Supporting Recovery from Long COVID: A digital care pathway

This short film explains how the pathway has supported one patient.

The quotes below are from other people who have used the pathway.

“It felt very supportive to speak to someone from CHSS and know that someone understood and was sympathetic to what I was going through. Having this service is a must for people in my situation. We all need that support.” – Chloe, 26

“I felt very lucky to be accepted on to the pilot programme, and I feel it had made a difference to me. The guy I spoke to at CHSS reassured me I was doing the right thing in managing my symptoms and gave me good advice about putting things into practice, which isn’t always easy to do.” – Mark, 52

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